The controversy as to whether a person
could hold a “property right” in the body of a
deceased relative dates back to the early days of
the English common law. Blackstone, the famous
commentator of the early English common law,
stated in his Commentaries that “no property right
exist[s] relative to a dead body” under the common
law. Courts have continued to recognize that there
is no property right in the commercial sense to
the body of a relative and that the laws relating
to wills and the descent of property do not apply
to a relative’s body. The situation however is far
from simple, as courts do recognize a right (or
duty) to arrange burial and a right to maintain
the security of the interred body (within
limits)—a so-called “quasi-property
right.”
Courts in America have created this legal
fiction of a “quasi-property right” in a corpse
that is held by the next-of-kin. This
“quasi-property right” gives the next-of-kin
certain rights over the body of a decedent which
will be protected by the courts. These rights and
responsibilities include the right to custody of
the body, to arrange burial, and to prevent the
corpse from disturbances after burial (with
certain court-ordered
exceptions).
The Uniform Anatomical Gift Act of
1968
In response to the wide variation in state
laws regarding organ and tissue donation, the
National Conference of Commissioners on Uniform
State Laws (“NCCUSL”) met in August, 1967 to
develop what became the Uniform Anatomical Gift
Act of 1968 (“1968 Act”). The purpose of the
NCCUSL is to promulgate model statutes in diverse
areas of the law, which then can be adopted by the
various states; the hope being that the Uniform
Acts will be adopted with little if any variation
by all the states, thereby resulting in uniformity
of law across state lines. The NCCUSL noted in its
Prefatory Note to the 1968 Act that, as regards
the law of organ donation, “both the common law
and the present statutory picture is one of
confusion, diversity and inadequacy.” The purpose
then of the commissioners was to provide a
“comprehensive approach to organ donation.” The
commissioners’ hope for widespread acceptance of
the 1968 Act was promptly realized when it was
adopted, in substantially unchanged versions, by
all states and the District of Columbia by 1971,
with forty-one states having adopted it within
eighteen months of its
presentation.
The goal of the NCCUSL, in drafting the
Act, was to address the principal legal questions
in the area of anatomical gifts, which were listed
in the Prefatory Note:
- who may during his lifetime make a
legally effective gift of his body or a part
thereof,
- what is the right of the next-of-kin,
either to set aside the decedent’s expressed
wishes, or themselves to make the anatomical
gifts from the dead body,
- who may legally become donees of
anatomical gifts,
- for what purposes may such gifts be
made,
- how may gifts be made, can it be done by
will, by writing, by a card carried on the
person, or during his lifetime,
- how may a gift be revoked by the donor
during his lifetime,
- what are the rights of survivors in the
body after removal of donated parts,
- what protection from legal liability
should be afforded to surgeons and others
involved in carrying out anatomical
gifts,
- should such protection be afforded
regardless of the state in which the document of
gift is executed
- what should the effect of an anatomical
gift be in case of conflict with laws concerning
autopsies,
- should the time of death be defined by
law in any way
- should the interest in preserving life by
the physician in charge of a decedent preclude
him from participating in the transplant
procedure by which donated tissues or organs are
transferred to a new host.
This list of questions highlights what were
the major areas of legal confusion, which the
commissioners sought to clarify in drafting a
model act that would be presented to the various
states for adoption. The commissioners’ task was
not easy, as they had the difficult task of
balancing all of the competing interests in this
highly-charged and emotional area of the law.
Their goal was to balance the wishes of the
deceased, the wishes of the surviving family,
society’s need for human organs, and the states’
interest in preserving life.
The 1968 Act met with widespread approval
and was, as mentioned above, adopted by all states
within three years. Currently, approximately
thirty-two states have anatomical gift statutes
that are based on the 1968 Act. While there were
(and are) slight variations among the states,
which has led to somewhat less than complete
uniformity, the 1968 Act was substantially adopted
as drafted. Most of the variations have been
minor, e.g. Alaska set its minimum age for
donation at nineteen years of age, rather than
eighteen. The remaining eighteen states have
adopted a later uniform act, the Uniform
Anatomical Gift Act of 1987 (discussed infra), or
in the case of Indiana, a hybrid of the two
acts.
The 1968 Act consists of seven major
sections. Descriptions of the sections herein
pertain to the Uniform Act itself and physicians
must consult their particular state’s statute
since variations, generally minor, do exist.
Section 2 of the 1968 Act provides for individuals
“of sound mind and 18 years of age or more [to]
give all or any part of his body . . . to take
effect upon death.” In addition, the Section
establishes a priority list of individuals who
may, “in the absence of actual notice of contrary
indications by the decedent . . . give all or any
part of the decedent’s body.” The order of
priority is: l) spouse, 2) adult son or daughter,
3) either parent, 4) an adult brother or sister,
5) a guardian of the person of the decedent at the
time of his death, and 6) any other person
authorized or under obligation to dispose of the
body. The 1968 Act also requires that the
individual making the donation not have any actual
notice of “opposition by a member of the same or a
prior class.” The donation therefore can be made
by a listed individual, so long as there was no
known objection by the decedent, or any objection
by an individual in the same or a higher priority
classification. Of note is the fact that the final
priority classification is “any other person
authorized or under obligation to dispose of the
body,” a group that would include
non-relatives.
Section 4 of the 1968 Act specifies the
manner in which an anatomical gift may be made.
There are two ways in which an anatomical gift
document may be executed—by will or by a written
document other than a will. Section 4(a)
specifically allows for an anatomical gift to be
“made by will—a significant extension of
traditional estate law to be sure.” Such a will
provision will (and obviously must) be effective
without waiting for probate, since such a delay
would make the donation worthless. In fact, the
anatomical gift provision in the will is
effective, even if the will is otherwise found,
for whatever reason, to be invalid. The second
available method of executing an anatomical gift
document is by a written document, which is not a
will. Such a document “may be a card designed to
be carried on the person, [and] must be signed by
the donor [in the presence of 2 witnesses who must
sign the document in his presence]” (e.g. the back
of a drivers license). A gift made by a relative
need not be in writing and signed, but rather may
be made by “telegraphic, recorded telephonic or
other recorded message,” since the decedent’s
relatives may be far from the place of
death.
There is, in Section 6, a provision for
amendment or revocation of the gift. An individual
may revoke his anatomical gift document by: l)
executing and delivering to the donee a signed
statement of revocation, or 2) an oral statement
of revocation in the presence of two persons which
is communicated to the donee, or 3) a statement
during a terminal illness or injury to an
attending physician and communicated to the donee,
or 4) a signed card or document found on the
decedent’s person or in his effects. If the gift
was made by will, it may be modified or revoked
according to the manner prescribed for the
revocation of wills, a matter of individual state
law. These provisions are obviously crucial to
assure that the ultimate desires of the potential
donor will be carried out.
Section 7, which contains the limitation of
liability provision, is a crucial portion of the
Act. First, this section addresses the
determination of the time of death—“The time of
death shall be determined by a physician who tends
the donor at his death.” The Act leaves the
determination of death to the attending physician
who should determine death by accepted medical
standards. There is no attempt to try to
statutorily specify a method of determining the
time of death (a strength or weakness of the 1968
Act, depending on who the commentator is). The Act
does, however, provide that the physician who
makes the determination of death “shall not
participate in the procedures for removing or
transplanting a part,” so as to avoid any possible
appearance of a conflict of interest. [This
concern of a conflict of interest remains a
concern of a small, but significant, number of
potential donors and their families.] Most
importantly, this section contains, in §7(c), a
limitation of liability person who acts in good
faith in accord with the terms of this Act or with
the anatomical gift laws of another state [or a
foreign country] is not liable for damages in any
civil action or subject to prosecution in any
criminal proceeding for his act.” Interpretation
of this section is often determinative in deciding
cases related to anatomical gifts, as will be seen
in the cases described later in this article.
Courts have followed the intent of the drafters,
who stated in the Comment Section, that the
immunity section “merits genuinely liberal
interpretation to effectuate the purpose and
intent of the Uniform Act, that is, to encourage
and facilitate the important and ever increasing
need for human tissue and organs.”
The 1968 Act was not without its
shortcomings. One of the major perceived
shortcomings was the donor card system. Despite
the fact that it was the intent of the
commissioners, and the statutory language is clear
to that effect, that a properly executed donor
card would be a legally binding document, in
practice, it has not been treated that way.
Rather, consent from the decedent’s relatives is
routinely sought, and no donation takes place
without the relatives’ consent, even if there is a
valid donor card. Organ procurement agencies have
generally not been willing to subject themselves
to the potential legal challenges and bad public
relations that could result if organs were
harvested, and then, after the harvest, relatives
are upset and bring legal action against the
procurement agency. As of 1983, only California,
Colorado, Florida, and Wyoming were taking full
advantage of the 1968 Act and harvesting organs
solely on the authority of a donor document. The
1968 Act was also criticized for its apparent
inability to substantially increase the supply of
organs for transplant. According to American Red
Cross statistics, although there were more than
23,000 potential donors killed in accidents in
1991, organs were harvested from only about 3,000.
These were two of the primary issues that the
commissioners sought to address when they met in
1985 to discuss possible revisions of the 1968
Act.
The Uniform Anatomical Gift Act of
1987
In response to proposals for improvements
in the 1968 Act, the NCCUSL began work in 1985 to
draft amendments to the Act, and the 1987 Uniform
Anatomical Gift Act (“1987 Act”) was approved in
1987, and has subsequently been adopted, in large
part, by eighteen states. One state, Indiana, has
chosen to adopt a true hybrid of the 1968 and 1987
Acts. The Prefatory Note to the 1987 Act
identified the key problems, in the opinion of the
commissioners that continued to hinder organ
donation:
- Failure of persons to sign written
directives.
- Failure of police and emergency personnel
to locate written directives at
- accident sites.
- Uncertainty on the part of the public
about circumstances and timing of organ
recovery.
- Failure on the part of medical personnel
to recover organs on the basis of written
directives.
- Failure to systematically approach family
members concerning donation.
- Inefficiency on the part of some organ
procurement agencies in obtaining referrals of
donors.
- High wastage rates on the part of some
organ procurement agencies in failing to place
donated organs.
- Failure to communicate the pronouncement
of death to next of kin.
- Failure to obtain adequate informed
consent from family members.
Unfortunately, while these important
concerns were identified and addressed, the
changes enacted in the 1987 Act have not
substantially improved the supply of organs for
transplantation.
The 1987 Act consists of seventeen
sections, compared to eleven in the 1968 Act.
There were a number of significant changes from
the 1968 Act which were made in the 1987 Act,
although most sections were left substantively
unchanged.
Section 2(h) of the 1987 Act clarified the
fact that an individual’s donation of his or her
organs and/or tissue cannot be overridden. This
point was not sufficiently clear in the 1968 Act
and, as a result, transplant services were
unnecessarily requesting consent from relatives
when the donor had already executed a valid donor
card. [The practice of not harvesting organs or
tissue without the consent of relatives, even when
a legally binding donor instrument has been
executed, remains the practice today.] As a
result, significant numbers of potential organs
and tissue for transplantation are
lost.
Section 4 provides, in certain cases, for
the medical examiner to authorize the donation of
tissue from a body, which is in the custody of the
medical examiner. The medical examiner must make a
“reasonable effort” to locate the decedent’s
relatives and give them the option to object, and
must also have no actual knowledge of a refusal to
donate by the decedent or an authorized
relative.
Section 5 requires routine inquiry
regarding organ and tissue donation of patients,
“on or before admission to a hospital,” as well as
of relatives, “at or near the time of [the] death
of a patient.”
Section 9 prohibits the sale or purchase of
“a part for transplantation or therapy, if removal
of the part is intended to occur after the death
of the decedent”. Interestingly, the section does
not proscribe the sale of “parts” by living
donors, if harvest is intended to take place
before death. This section, however, is
effectively preempted by Federal law, which
prohibits the purchase or sale of human organs for
transplantation (discussed infra).
Positive response to the 1987 Act has not
been as widespread as was the response to the 1968
Act. Resistance to adoption of the 1987 Act has
been attributed in particular to concerns
regarding sections 4 and 5(a). Objections have
been raised to the “presumed consent” aspect of
Section 4, which allows for the harvest of tissues
without the family’s consent, or even knowledge.
Many states already had presumed consent/removal
statutes, but they were, and are, generally
limited to the removal of corneas and pituitary
glands. This section went significantly beyond the
then existing removal statutes. Section 5(a) has
provoked even more controversy than Section 4. The
required inquiry at the time of hospital admission
has, in most states, not been adopted. While
proponents of this section feel that it would
increase donation, opponents have been concerned
that it might have the opposite effect, and might
“actually dissuade potential donors because of the
timing or setting.” It is not clear which side is
right, but what is clear, is that just after death
is not a very opportune “timing or setting” for
the discussion of organ and tissue donation.
Finally, there has been an understandable lack of
urgency regarding the adoption of the 1987 Act,
because all states already had in place a version
of the 1968 Act, a situation quite different than
in the late 1960's when there was no uniformity
regarding organ donation
law.